Page 3 - Jupiter West - December '23

Jupiter West, Page 3

Live From Tequesta from page 1 Flint Technologies donated a laptop computer
as it has for many years, It’s Sugar contributed
for this annual affair – Lissa and Adam’s daughter Ava boxes of Schweddy Balls, and golf-related raffle
– came as a Spartan cheerleader (as did many others items provided by Tequesta Country Club to
in attendance), ready to cheer on guests who donned ensure that spirits were high and contributions
costumes spanning the decades, from the early years of kept coming as everyone tried their luck in
Killer Bees, Blues Brothers, Land Sharks, Wild and Crazy the evening’s games of chance. And of course,
Guys and Father Guido Sarducci to Da Bears fans, Hans Jupiter Law Center’s staff once again put in
and Franz, Wayne and Garth, Mary Katherine Gallagher, countless hours of coordination and were there
Opera Man, and Sally O’Malley. for the evening, insuring guests were welcomed
Classic SNL skits pulsed from big screen TVs, fun music and coordinating donations and raffle efforts.
kept the energy high and people on their feet, there were Nearly $40,000 was raised for the Aicardi
photo ops in front of iconic SNL backdrops and the food Syndrome Foundation and more donations will
and drinks from Tequesta Country Club staff dressed as continue to arrive through the balance of the
Coneheads kept everyone fueled in style. year. The event is a passion project for Adam
and Lissa Gumson, whose oldest daughter, Ava,
was diagnosed as a baby
with Aicardi Syndrome,
a rare congenital
neurological seizure
disorder which inhibits
the normal development
of motor skills, sight and
speech, causing mild to
profound developmental
delays. When she was
diagnosed, the Gumsons
were informed that
Ava’s life expectancy
was no more than two
years. Now 19, Ava
continues to defy the
odds. She attends The Learning Academy on the campus of Conference where people from all over the world gather to
the Els Center of Excellence and although she is nonverbal, exchange information. This, in turn, enhances each family’s
severely delayed and has multiple daily seizures, she is a ability to care for its own Aicardi child. Since only 4,000
happy, joyful girl. girls worldwide are afflicted with Aicardi Syndrome, there
Adam and Lissa have become more and more involved is very little money for research and the foundation is made
with the foundation each year. What started as a small party up entirely of volunteers (mostly the affected families and
with friends and family hosted at the Gumsons’ home in the their extended family and friends).
early years has blossomed into a major annual event now To learn more about Aicardi Syndrome, the Aicardi
held at the Tequesta Country Club. The monies raised since Syndrome Foundation or Ava Shaye Gumson and/or the other
2006 help the foundation to fund research grants at both Aicardi girls, log on to www.aicardisyndromefoundation.
Baylor University and the University of California at San org and/or www.ouraicardilife.org or contact Jupiter Law
Francisco, underwrite the cost of wheelchairs and equipment Center at (561) 744-4600 if you have any other questions

that otherwise may not be obtainable and subsidize the cost about Aicardi Syndrome or about how you can help support
for Aicardi families to attend the every-other-year Family the foundation.

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