Page 3 - Jupiter Spotlight - December '23

Jupiter Spotlight, Page 3

Live From Tequesta from page 1 of course, Jupiter Law Center’s staff once again put in countless and family hosted at the
hours of coordination and were there for the evening, insuring Gumsons’ home in the early
inspiration. The muse for this annual affair – Lissa and Adam’s guests were welcomed and coordinating donations and raffle years has blossomed into a
daughter Ava – came as a Spartan cheerleader (as did many others efforts. major annual event now held
in attendance), ready to cheer on guests who donned costumes Nearly $40,000 was raised for the Aicardi Syndrome at the Tequesta Country Club.
spanning the decades, from the early years of Killer Bees, Blues Foundation and more donations will continue to arrive through The monies raised since
Brothers, Land Sharks, Wild and Crazy Guys and Father Guido the balance of the year. The event is a passion project for Adam 2006 help the foundation to
Sarducci to Da Bears fans, Hans and Franz, Wayne and Garth, and Lissa Gumson, whose oldest daughter, Ava, was diagnosed fund research grants at both
Mary Katherine Gallagher, Opera Man, and Sally O’Malley. as a baby with Aicardi Syndrome, a rare congenital neurological Baylor University and the
Classic SNL skits pulsed from big screen TVs, fun music seizure disorder which inhibits the normal development of motor University of California at
kept the energy high and people on their feet, there were photo skills, sight and speech, causing mild to profound developmental San Francisco, underwrite
ops in front of iconic SNL backdrops and the food and drinks delays. When she was diagnosed, the Gumsons were informed the cost of wheelchairs and
from Tequesta Country Club staff dressed as Coneheads kept that Ava’s life expectancy was no more than two years. Now equipment that otherwise
everyone fueled in style. 19, Ava continues to defy the odds. She attends The Learning may not be obtainable and
Flint Technologies donated a laptop computer as it has for Academy on the campus of the Els Center of Excellence and subsidize the cost for Aicardi families to attend the every-other-
many years, It’s Sugar contributed boxes of Schweddy Balls, and although she is nonverbal, severely delayed and has multiple year Family Conference where people from all over the world
golf-related raffle items provided by Tequesta Country Club to daily seizures, she is a happy, joyful girl. gather to exchange information. This, in turn, enhances each
ensure that spirits were high and contributions kept coming as Adam and Lissa have become more and more involved with family’s ability to care for its own Aicardi child. Since only 4,000
everyone tried their luck in the evening’s games of chance. And the foundation each year. What started as a small party with friends girls worldwide are afflicted with Aicardi Syndrome, there is very
little money for research and the foundation is made up entirely
of volunteers (mostly the affected families and their extended
family and friends).
To learn more about Aicardi Syndrome, the Aicardi Syndrome
Foundation or Ava Shaye Gumson and/or the other Aicardi girls,
log on to www.aicardisyndromefoundation.org and/or www.
ouraicardilife.org or contact Jupiter Law Center at (561) 744-
4600 if you have any other questions about Aicardi Syndrome
or about how you can help support the foundation.

Editorial copy appearing herewith is not necessarily the viewpoint of
Seabreeze Publications of Central Florida. Most editorial copy is created by
the homeowners and is edited by their appointed editor.

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